What Is The Experience Of Sickle Cell Patients When Accessing Care UK Assignment Sample

• Type Assignment
• Downloads534
• Pages11
• Words2842

Introduction to What Is The Experience Of Sickle Cell Patients When Accessing Care In The UK?

Sickle Cell Disease (SCD) is a symptomatic blood disorder occurring in persons of African, Caribbean, Middle Eastern and South Asian descent. In the United Kingdom, it affects over 15,000 individuals, making it the most widely spread inherited blood disorder. While widely reported among some ethnic groups, the condition remains relatively invisible in the health care space and therefore ignored by the health system to an extent. Therefore, knowledge of Sickle Cell patients’ perceived care-seeking experiences in the UK healthcare system will help to redress these imbalances and to enhance care.

What Is The Experience Of Sickle Cell Patients When Accessing Care UK Assignment Sample

Liked This Sample? Hire Me Now

Adam Pierce 5 Years | MA

It is even important because today, Sickle Cell patients often experience restricted access to pain relief during crises, insufficient medical professionals’ awareness of their illness, and discrimination and prejudice. Such factors lead to adverse patient interactions and clinical experiences and might precipitate or worsen an illness. Also, discussing minority ethnic communities and issues relating to health equity is relevant to the current developments of the NHS policies that address diversity and inclusion in health care systems. For students seeking deeper insights into this topic, expert Assignment Help in UK services can provide valuable academic guidance and support.

Annotated Bibliography

Introduction

This article aims to examine the ethnic minority groups’ access, care inequalities and enabling factors in the use of health services in the East Midlands, UK. The context of the study called present is devoted to investigating the influences of cultural, systematic, and socioeconomic factors on healthcare services.

Aims & Research Methods

Survey questionnaires and interviews are used in the study to compare the experiences of ethnic minorities in healthcare (Ekezie et al., 2023). Due to the collection of patient stories and quantitative information, it covers systemic issues sufficiently.

Scope

While not unique to Sickle Cell Disease patients, some of the challenges noted are those often reported by minorities as they access healthcare and are germane to SCD patient findings (Ekezie et al., 2023).

Usefulness

The study adds to the existing literature in terms of the type of barriers defined as institutional and cultural that are equivalent to the SCD patient experience in the UK. It expands the knowledge of how prejudice in the structure of organizations affects ethnic minorities more than other communities.

Limitations

The results obtained are partial as they reflect region-specific characteristics and do not always reflect the overall situation in the country (Ekezie et al., 2023). It also eliminates chronic diseases like SCD specifically.

Reflection

This study will be utilized in the current literature review to help orient the readers on systemic disparities in access to healthcare that underpin the general literature sources on SCD that are largely disease-specific.

Introduction

This paper assesses the impact of a new integrated care model used in the management of patients with chronic diseases. The model is meant to ensure that healthcare and social services are integrated and focus on the comprehensiveness of the patient’s care.

Aims & Research Methods

The study uses quantitative methods through a single grouping research design of clinical trial; care approaches are patient-centred. It evaluates patient benefits using other means within a trial period such as Quality of Life questionnaires and canceled-out patient satisfaction scores (Gavaldà-Espelta et al., 2023).

Scope

Although in general, rather than being concerning Sickle Cell Disease, the study suggests integrated care approaches potentially of value in handling multiple needs concerning chronic diseases. The conclusion of the present work has implications for the identification of optimal care trajectories and the minimization of care gaps in the context of Sickle Cell.

Usefulness

It contributes towards the construction of care models for chronic diseases that can improve the NHS experience for Sickle Cell patients, therefore patient-centred approaches are favoured in this research (Gavaldà-Espelta et al., 2023).

Limitations

It has a prospective single-group trial and no control group to use for comparison. Besides, it primarily addresses non-sickle cell-related chronic diseases and not diseases of the blood.

Reflection

Discussions regarding the enhancement of care pathways and minimising of organisational delays regarding Sickle Cell patients will be couched in this source. It will be mentioned in the recommendation segment of the dissertation.

Introduction

This article outlines the purpose of the study which is to explore how the degree of need for healthcare services in the business and geographic location affects the users of Sickle Cell Disorder (SCD). This paper is centred on the differences in the availability of health care services between the urban populous and rural communities in North Carolina, USA.

Aims & Research Methods

In order to collect information on healthcare use, demographic characteristics and health status, the study is a cross-sectional one. One of them is comparing the rural and the urban groups to look for geographic variations and how they affect the access of health services of SCD patients (Haque and Telfair, 2000).

Scope

Despite being based in the USA, the study provides useful information on how geographic and economic divides impede SAD patients from accessing healthcare in the UK based on comparisons of urban-rural differences in accessing healthcare (Haque and Telfair, 2000).

Usefulness

This has raised concerns such as poverty, health facility deficiencies and lack of access in rural areas which are also similar to the situation observed for SCD patients in the UK. It provides a conceptual model for explaining factors that are outside the individual-context_boundary interacting with each other to determine the use of health services (Haque and Telfair, 2000).

Limitations

The study takes its geographical setting in North Carolina and the data collected is dated 2000 hence it is outdated in responding to current health systems and global settings.

Reflection

This source will be used in the discussion of my dissertation to provide comparison between healthcare disparities in urban and rural SCD patients, linking to the UK context, and to consider ways forward for the disparities.

Introduction

This paper explores the effect of the stigma associated with health they have faced young adults with sickle cell disease (SCD). To examine how stigma interferes with mental health, patterns of seeking medical care, and interactions with medical personnel.

Aims & Research Methods

The study uses quantitative and qualitative research to investigate the stigma experiences of young adults with SCD. It examines the psychological and social effects of stigma as well as the part it plays in delaying or forbidding medical intervention.

Scope

The study is concerned with the psychosocial experience of SCD, primarily how stigma brings about barriers (Jenerette and Brewer, 2010). Although the field research is conducted in the United States, the conclusions apply to the UK, in which there are related problems of prejudice and discrimination in the sphere of medicine.

Usefulness

These gaps form an important foundation of knowledge of how stigma reduces the healthcare experience of SCD patients, an important consideration in the UK on how patients view the system and their perception of healthcare (Jenerette and Brewer, 2010).

Limitations

The research is carried out among young adults thus restricting the scope of the research to other age brackets (Jenerette and Brewer, 2010). Moreover, it is developed in the context of the USA, and the results might be limited in terms of their generalization to the British context.

Reflection

This source shall be used in the discussion of stigmatization as one of the system-related barriers experienced by SCD patients in the UK. In the literature review, it will be mentioned to highlight psychosocial issues that such people encounter.

Introduction

The present research uses the SHAPE survey to explore the impact of Sickle Cell Disease SCD on the patient, caregivers, and healthcare providers. It focuses on aspects of healthcare, patients and the gaps in the healthcare delivery systems (Mariane de Montalembert et al., 2024).

Aims & Research Methods

The survey is regarded as both quantitative and qualitative to collect information from adolescents and adults, caregivers and professionals. It is aimed at developing knowledge about the quality of physical, emotional, and social well-being of patients with SCD as well as the people surrounding them.

Scope

The multinational character of the shape survey gives an idea about similarities and differences of patients’ concerns in various health care systems to which belong the UK. This paper points out differences in treatment and care, the role of a patient advocate, and getting the word out to fellow healthcare practitioners (Mariane de Montalembert et al., 2024).

Usefulness

With the many facets of SCD addressed in this work, this study is valuable to synthesise patient and caregiver accounts alongside those of the professionals. Its findings regarding the deficiencies found in the overall healthcare supply and demand can be useful in assessing similar problem areas in the United Kingdom (Mariane de Montalembert et al., 2024).

Limitations

This can create a problem of identification of the trends specific to the UK only because of the global environment prevailing in the world. On one hand, the broad pool of participants discussed may restrain the extent of emphasis put on a specific type of stakeholder.

Reflection

This source will complement the literature review and discussion sections as it will give a more exhaustive picture of the multifaceted difficulties encountered by SCD patients and their carers, as well as the healthcare system in the UK and on an international scale in comparison.

Introduction

This article brings an overview of the challenges related to SCD and assesses the existing measures of management (Martinez, Osei-Anto and McCormick, 2020). It offers information on best practices and the development of new approaches to interventions on behaviour.

Aims & Research Methods

The work adopts a systematic review of literature to assess complications of SCD including vaso-occlusive crisis, stroke as well as organ injury and drug/non-drug therapy (Martinez, Osei-Anto and McCormick, 2020).

Scope

They concern itself with clinical practice, patient health and satisfaction, and new developments such as gene therapy medication and specially designed drugs and pharmaceuticals (Martinez, Osei-Anto and McCormick, 2020).

Usefulness

This source is useful for learning about the health complications of SCD and evaluating the impacts that management strategies pose on the patient’s ability to get treatment and quality of life (Martinez, Osei-Anto and McCormick, 2020). It offers a theoretical framework that is relevant to the deficit of patient experience-oriented sources in the dissertation.

Limitations

This is because clinical approaches, on which the study focuses, do not exhaustively consider systematized factors SCD, patients go through such as stigma and delay in treatment among others.

Reflection

The literature review will use this source to create clinical relevance to the problems that affect SCD patients, they will act as a framework for the discussion of how systematic issues affect the practice of evidence-based practice in the UK.

Introduction

It highlights the knowledge and management of Sickle Cell Disease (SCD) amongst the health care providers in Kinshasa, Democratic Republic of the Congo (DRC). It reveals areas where current provider trainings is lacking and the consequences of this absence for patients.

Aims & Research Methods

The examination of knowledge of SCD symptoms, complications and treatment protocols involves administering both questionnaires and focus group discussions to the healthcare providers (Ngonde et al., 2024). The research is conducted to discover what is not known and what factors may need to be further developed.

Scope

While this study is context-specific to the DRC, patterns uncovered about provider knowledge and practice are not vastly different from the issues that may be faced in the UK context. It gives ideas into the systematic effects resulting from malpractice in developing competent providers.

Usefulness

This research also points out the need to ensure that healthcare providers are well armed with adequate knowledge to handle SCD adequately. It compares them to similar obstacles in UK, where gaps in provider training may cause delays in cancer diagnosis and inadequate treatment.

Limitations

The study is area sensitive and therefore not wholly relevant to the UK healthcare system. Also, it mainly considers the points of view of providers rather than the patients.

Reflection

It will be used again in the discussion session of the dissertation whereby a need for the health care providers to be more trained in handling SCD will be strongly advocated for in the UK.

Introduction

The purpose of this paper is to review the reported opinions of SCD patients regarding the gap in care. This analysis is centered specifically on the patients experiences such as stigma, delay and systemic prejudice.

Aims & Research Methods

This research employs a qualitative research method through its data being collected from participants with SCD through interviews. It stands out for presenting commonalities in patients’ accounts such as racism, poor treatment of pain, and restricted access to treatment.

Scope

It outlines the patient experiences and specific elements of care, and how and when they perceived them to be problematic, providing an inside view into the structural and relational issues most impactful to patients with SCD (Phillips et al., 2022). Despite its US context, a number of the identified facts have rather acute parallels in the situation of the UK.

Usefulness

This study is highly useful for explaining the narratives of SCD patients, with focus on the organisational prejudice and discriminatoriness that contributes to SCD patients lack of adequate medical attention (Phillips et al., 2022). It is in harmony with the dissertation objectives to examine patients’ experiences in the UK.

Limitations

The study is conducted only in the USA, while the structure of the health care systems of the USA and Great Britain significantly differs. Also, it fails to engage at identifying the possible remedies to the mentioned barriers.

Reflection

This source will be for the literature review to provide examples of many of the concerns faced by SCD patients when trying to seek care. It will add value to UK-centred research since it shall offer a framework to benchmark systemic issues.

Introduction

Presenting Hospitalization Trends for Complication related to Sickle Cell Disease (SCD) in the United States: 2004 to 2012 They include frequency, healthcare resource consumption and patients’ demographics.

Aims & Research Methods

The study designs a cross-sectional study using nationally representative hospitalization data to determine temporal trends in SCD-associated complications of vaso-occlusive crises, infections, and organ damage. It also studies hospital admission differences across age, sex, and socio-economic status (Thi Nhat Ho et al., 2019).

Scope

Despite being set in the USA, the results are quite helpful in understanding how healthcare systems address the complications of SCD. Some of the topics, including the relationship between socio-economic factors and utilisation of care , are easily generalisable to the UK healthcare system.

Usefulness

This research helps identify these systems, which existing research has highlighted as a key issue in SCD management and in understanding the additional strain on the health system. It furnishes empirical data, which enriches empirical research concentrating on patients’ experiences (Thi Nhat Ho et al., 2019).

Limitations

The study is conducted in the USA only and its data is of 2012, thus it may not represent the latest information. In addition, the studies have not focused on patients’ attitudes or on their real-life experiences.

Reflection

This source will be used for the literature review to ascertain the healthcare utilisation of SCD complications and get comparative data for similar patterns in the United Kingdom (Thi Nhat Ho et al., 2019).

References

• Ekezie, W., Shabana Cassambai, Czyznikowska, B., Curtis, F., O’Mahoney, L.L., Willis, A., Chudasama, Y., Kamlesh Khunti and Farooqi, A. (2023). Health and social care experience and research perception of different ethnic minority populations in the East Midlands, United Kingdom (REPRESENT study). Health Expectations, 27(1). doi:https://doi.org/10.1111/hex.13944.
• Gavaldà-Espelta, E., Maria, Jordi Baucells-Lluis, Ferré-Ferraté, M., Begoña Tomàs-Navarro, Curto-Romeu, C., Jorgina Lucas-Noll, Macarena Pozo Ariza, Elisabet Castro-Blanco, José Fernández Sáez, Carina Aguilar Martín, Alessandra Queiroga Gonçalves and Ferré-Grau, C. (2023). Innovative Health and Social Integrated Care Model Effectiveness to Improve Quality Care for Chronic Patients: A Single Group Assignment Clinical Trial. International Journal of Integrated Care, 23(4). doi:https://doi.org/10.5334/ijic.6759.
• Haque, A. and Telfair, J. (2000). Socioeconomic Distress and Health Status: The Urban-rural Dichotomy of Services Utilization for People With Sickle Cell Disorder in North Carolina. The Journal of Rural Health, 16(1), pp.43–55. doi:https://doi.org/10.1111/j.1748-0361.2000.tb00435.x.
• Jenerette, C.M. and Brewer, C. (2010). Health-Related Stigma in Young Adults With Sickle Cell Disease. Journal of the National Medical Association, [online] 102(11), pp.1050–1055. doi:https://doi.org/10.1016/s0027-9684(15)30732-x.
• Mariane de Montalembert, Anderson, A., Costa, F.F., Baba, Wasil Jastaniah, Kunz, J.B., Biba Tinga, Ingoli, E., James, J., Hartfield, R., Beaubrun, A., Lartey, B. and Odame, I. (2024). Sickle Cell Health Awareness, Perspectives, and Experiences (SHAPE) survey: Perspectives of adolescent and adult patients, caregivers, and healthcare professionals on the burden of sickle cell disease. European journal of haematology. doi:https://doi.org/10.1111/ejh.14211.
• Martinez, R.M., Osei-Anto, H.A. and McCormick, M. (2020). Complications of Sickle Cell Disease and Current Management Approaches. [online] www.ncbi.nlm.nih.gov. National Academies Press (US). Available at: https://www.ncbi.nlm.nih.gov/books/NBK566466/.
• Ngonde, A.-C.M., Fina, J.-P.L., Burgueno, E. and Lukanu, P.N. (2024). Knowledge and practices of sickle cell disease among healthcare providers in Kinshasa, Democratic Republic of the Congo. African Journal of Primary Health Care & Family Medicine, [online] 16(1). doi:https://doi.org/10.4102/phcfm.v16i1.3631.
• Phillips, S., Chen, Y., Masese, R., Noisette, L., Jordan, K., Jacobs, S., Hsu, L.L., Melvin, C.L., Treadwell, M., Shah, N., Tanabe, P. and Kanter, J. (2022). Perspectives of individuals with sickle cell disease on barriers to care. PLOS ONE, 17(3), p.e0265342. doi:https://doi.org/10.1371/journal.pone.0265342.
• Thi Nhat Ho, A., Shmelev, A., Joshi, A. and Ho, N. (2019). Trends in Hospitalizations for Sickle Cell Disease Related-Complications in USA 2004 - 2012. Journal of Hematology, 8(1), pp.11–16. doi:https://doi.org/10.14740/jh475.